Medically reviewed online resources educate patients on treatment options for this rare disease
SAN FRANCISCO/February 28, 2023 — MyHealthTeam, creator of the largest and fastest-growing social networks for people facing rare disease or chronic health conditions, announced today for Rare Disease Day that it launched myITPcenter, a knowledge center for people facing immune thrombocytopenia (ITP). myITPcenter features medically reviewed resources about living with the disorder, including information about symptom management and guidance for talking with doctors about treatment options.
Immune thrombocytopenia (ITP) is an autoimmune bleeding disorder characterized by abnormally low levels of blood cells called platelets, a situation referred to as thrombocytopenia. If someone has a platelet count lower than 100,000/µL of blood with no other reason for having low platelets, that person might have ITP. It is estimated only 9 to 12 people out of 100,000 people are living with this rare disorder in the US.
“ITP can have a substantial impact on a person’s quality of life,” said Eric Peacock, cofounder and CEO of MyHealthTeam. “These patients experience reduced energy levels, limited ability to perform daily tasks and can experience anxiety, fear, depression, or embarrassment due to their unexplained bruising and bleeding symptoms. The medically reviewed content in myITPcenter empowers people to work with their doctors to map the right course of action for them.”
Patient education content within myITPcenter – all free to access – includes:
MyHealthTeam believes that if you are diagnosed with a rare disease or chronic condition, it should be easy to find and connect with others like you. MyHealthTeam creates social networks that provide support and information for people living with a chronic health condition. Millions of people have joined one of the company’s 46 highly engaged communities focusing on the following conditions: Alzheimer’s, amyloidosis, asthma, autism, autoimmune hemolytic anemia, breast cancer, COPD, chronic pain, COVID-19, Crohn’s and ulcerative colitis, depression, diabetes (type 2), eczema, endometriosis, epilepsy, fibromyalgia, food allergies, heart disease, hemophilia, hidradenitis suppurativa, HIV, eosinophilic esophagitis, hyperhidrosis, immune thrombocytopenia, irritable bowel syndrome, leukemia, lung cancer, lupus, lymphoma, migraines, multiple sclerosis, myeloma, myeloproliferative neoplasms, narcolepsy, obesity, osteoporosis, ovarian cancer, Parkinson’s, PCOS, psoriasis, pulmonary hypertension, rheumatoid arthritis, spinal muscular atrophy, spondylitis, and vitiligo. MyHealthTeam social networks and knowledge centers are available in 13 countries.