Medically reviewed online resources educate patients on treatment options for this rare disease
SAN FRANCISCO — April 4th, 2023 — MyHealthTeam, creator of the largest and fastest-growing social networks for people facing chronic health conditions, yesterday announced the launch of MyKidneyDiseaseCenter, a knowledge center for people facing rare kidney diseases. The knowledge center focuses on two rare forms of kidney disease, complement 3 glomerulopathy (C3G) and immunoglobulin A nephropathy (IgAN). MyKidneyDiseaseCenter features medically reviewed resources about living with these diseases, including information on symptom management and guidance for talking with doctors about treatment options.
Both C3G and IgAN can lead to renal failure. It is estimated that only one to three people per million are diagnosed with C3G in the U.S. each year. At least 60,000 people in the U.S. are living with IgAN. However, these numbers may be higher because the kidney biopsy needed for diagnosis is not always performed. Worldwide, IgAN is the most common glomerulonephritis with 2.5 per 100,000 people newly diagnosed each year. While people may first show signs of IgAN at any age, they become apparent most often in the teens to late 30s.
“Both of these kidney diseases impact people at a relatively young age,” explained Eric Peacock, cofounder and CEO of MyHealthTeam. “Our goal is to make it easier for them to find the latest information about their condition so they can work with their doctors to map out a treatment plan that helps them preserve a high quality of life.”
Educational content within MyKidneyDiseaseCenter is free to access. It includes:
MyHealthTeam believes that if you are diagnosed with a rare disease or chronic condition, it should be easy to find and connect with others like you. MyHealthTeam creates social networks that provide support and information for people living with a chronic health condition. Millions of people have joined one of the company’s 46 highly engaged communities focusing on the following conditions: Alzheimer’s, amyloidosis, asthma, autism, autoimmune hemolytic anemia, breast cancer, COPD, chronic pain, COVID-19, Crohn’s and ulcerative colitis, depression, diabetes (type 2), eczema, endometriosis, epilepsy, fibromyalgia, food allergies, heart disease, hemophilia, hidradenitis suppurativa, HIV, eosinophilic esophagitis, hyperhidrosis, immune thrombocytopenia, irritable bowel syndrome, leukemia, lung cancer, lupus, lymphoma, migraines, multiple sclerosis, myeloma, myeloproliferative neoplasms, narcolepsy, obesity, osteoporosis, ovarian cancer, Parkinson’s, PCOS, psoriasis, pulmonary hypertension, rheumatoid arthritis, spinal muscular atrophy, spondylitis, and vitiligo. MyHealthTeam social networks and knowledge centers are available in 13 countries.