MyHealthTeam Launches MyDesmoidTumorTeam
Medically reviewed online content and resources for people living with this rare condition
SAN FRANCISCO/March 26, 2024 — MyHealthTeam, creator of the largest and fastest-growing social networks for people facing chronic health conditions, announced today that it launched MyDesmoidTumorTeam sponsored in part by SpringWorks Therapeutics, Inc. This new social network is dedicated to people living with desmoid tumors. It provides medically reviewed articles, resources and content to help them understand symptoms and potential treatments. It also offers guidance for talking with doctors and an ability to ask questions and learn from others in this rare disease community.
Visit MyDesmoidTumorTeam at www.mydesmoidtumorteam.com.
Desmoid tumors are soft-tissue tumors that occur in the connective tissue, typically found in the abdomen, arms and legs. Although they don’t metastasize, desmoid tumors can be invasive and aggressive, acting more like cancers and growing into, and disrupting, nearby structures and organs. For this reason, people with desmoid tumors are often cared for by oncologists. There are approximately 1,000 to 1,650 new cases in the United States, annually. Most patients are diagnosed between 20 and 44 years of age, and women are approximately two to three times more likely than men to be diagnosed. Since desmoid tumors, also known as aggressive fibromatosis, are rare, creating this online community and resource center will provide a safe place for people with desmoid tumors to find the people, medically reviewed information and support they need.
“We are thrilled to partner with SpringWorks Therapeutics in creating a much needed social network for people living with desmoid tumors,” said Eric Peacock, co-founder and CEO, MyHealthTeam. “People with desmoid tumors typically do not live near or even know other patients with this condition, and they may live far away from the leading oncologists treating desmoid tumors. Our goal is to make it easy for them to connect with the desmoid community.”
The new site, MyDesmoidTumorTeam, includes:
- Medically approved information about the condition including symptoms, causes and current treatments
- Insights and education on treatments and promising new diagnostic and treatment therapies
- Community conversation and support from people with desmoid tumors
- Guidance on managing this rare disease
This will be MyHealthTeam’s 13th social network dedicated to a rare disease. To date, the company’s work has helped more than 500,000 people facing a rare disease.
About MyHealthTeam
MyHealthTeam believes that if you are diagnosed with a rare disease or chronic condition, it should be easy to find the people, support and medically approved information you need to best manage your condition. Millions of people regularly visit one of the 56 condition-based communities by MyHealthTeam, from Alzheimer’s to vitiligo, covering all therapeutic areas and many rare conditions in between. Visit MyHealthTeam for a complete list of conditions served. MyHealthTeam social networks and knowledge centers are actively being used in 13 countries.
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